Its OK…

November 6th, 2006 by Atomictumor

Theres hope again, not that it was really gone. The only chance I really have to read all of your comments and emails and blog posts, and really feel your love, is after I get G and Pigpen to bed, and crawl that way myself. Normally, GAC and I are those wierd parents who put their kids to bed at 8, and Pigpen’s been adhering to that, but MastaG is staying up.

MastaG. He’s always gotten the short end of the internet stick, because he’s not a goofy, amazingly cute, strange little four year old like Pigpen, but MastaG is the man of the day.

Saturday, when we were losing her, when we had to leave the room because her BP dropped very, very low, MastaG, Pigpen and I went to the little chapel. I was two days back into getting in good with God, maybe one, but the first place we went was to pray. All three of us kneeled down, with some family behind us and outside, and prayed. I’ve talked about that before, on Saturday.

I didn’t say (to my knowledge) here that I told MastaG that this is the kind of thing that makes a boy into the man he will become. I never had something like this in my childhood, but that he will, for all his days, and he’ll look back on it as a defining moment. Maybe the defining moment.

He’s very deep, but strong. Stronger than I am, which I wouldn’t have suspected. He has a humor (which gets out of control occasionally) that sustains me. I don’t want to rely on my son for support, and I don’t, but it feels better when he’s around. We talk. I have to wait for him to come to me for real talk. He’s afraid we wouldn’t be a family without BJ, and I told him it’d be like a hand, if it lost a finger. It’d still be able to hold a cup, and pet a child, it’d still be a hand. Our family is that way.

Who thinks they have to tell this stuff to a 9 year old? MastaG’s birthday is in 3 or 4 weeks (22nd). When I was that age… well, we all were 9. The words, and the wisdom, can’t come from me.

The fact that I see beauty everywhere… can’t come from me. Everywhere. Look around, you’ll see it. Its right next to you. Its under your feet, and over your head.

GAC, you were responsive tonight. I feel you crying, through your eye furrows. I could feel you squeeze my hand, and I was told that Mom could feel a pulse in your foot.

Sweet girl. I was prepared (again) to lose you today. How can I feel ready to lose you? Oh, my dear girl. I love you, I love you, I love you.

Tonight you were worried about everybody else, which is exactly what you do. You were overwhelmed with emotion. I’d talk about how MastaG is my hero, and you cried. I told you “nothing to fear, nothing to doubt” and you smoothed up. We’d talk more, and I’d tell you about all this, the ‘tumor crashing under the clicks of all these wonderful, beautiful, amazing people who have the strength to witness this.

She is very aware of your thoughts, your hopes, your tears, your prayers. We’ll say for every one of mine that drop on her porcelean doll skin, its 100s of yours.

Thank you. Even if you don’t comment, or email, or call, even if you read this and you’re not touched by this angel of a girl, this sweet, hurt, sick goddess of a woman, if you can just try to see that beauty thats there when you hurt, it’ll be almost worth it.

Especially if the hope is worth it.

Guys, I’m feeling ready to lose her, but I… oh, man… I love her. I don’t want her to hurt, or fear. I’ll walk through the gates of hell for another moment with her.

Thats another thing that overwhelmed her, when I told her that every single second I spend with her, stroking her sweet head, holding her puffy hand, is the best gift, kissing those eyebrows, the only part of her body thats hers right now, these are moments worth any pain.

You’re still so far away.

Damn, this is a long post. Chaulk it up to the server running. If you’ve noticed, we’ve been redirected to a new server. Johnny Dobbins performed herculean work today, and he doesn’t get paid to do it.

This thing is how I cope. When it went down today, I started shutting down. I don’t know if I can do this without letting the emotion out here. I’m going to need to read this stuff to get through later parts of this pain, whats coming around the horizon, because I think it will be worse than this.

How can it get worse?

Thats another one of those damn ‘how’ questions, and this is the objective part of my essay.

Gary was the nurse again this evening. I didn’t click well with Linda, and I told him that. Not to remove her, because I’m sure she was excellent, but she drained my hope. If GAC dies, if my hope is for naught, I’ll deal with that then. I don’t need my hope gone, because it is sustaing me.

I think people there see me, standing, asking questions, smiling as I talk to them, and think I don’t understand. Others think that I’m evading. No, its all there.

I don’t need nurses to tell me how critical it is, until she is at the final turn. Gary, Jack, Nate, they seemed to understand it.

Or maybe its just because they’re men. How fucking sexist is that? GAC will have a time with that. Ladies, I’m a pretty liberated guy, having a wife like her. Seriously.

But I can’t help it. I didn’t work well with her. She seemed to talk down to me, she seemed to not understand that I want to know what the systolic pressure is, and what the white cell count is, what the PCO2 is, and the liver enzyme, and the bicarb. I need to know what her heart is doing. What her pulse is. Her temp. I need the facts, because I can work with numbers.

As I cope, I’m learing to work with the non-objective things.

GAC’s will is so strong. It could move mountains.

I’m learning something about grief. I realized tonight that I’ve been stressing about not feeling the grief, which is dumb. What I should be feeling is the love, and I feel that so strongly. Her love, and my love for her, flows like an aura.

I feel her, in the back of my head, through that love.

There were no tears produced in the writing of this post, and thats OK. If I want to defer the racking sobs, well, thats just fine. I’m a little sick of em.

I’d rather focus on those eyebrows. That hand squeezing me. The fact that I can calm her. That more than anything.

GAC, my girl. My love, my darling. I love you so much. Come back to me, GAC. Heal your body, heal your blood, heal your organs. Please, please, please, God, let my GAC come back to me. My sweet BJ.

I might write more tonight.

There is nothing to fear, nothing to doubt.

I love you, BJ.

10 Responses to “Its OK…”



  1. Kerri Says:

    Here continuing to pray and hope. So cool to hear of your great love for her. That she has that in her life is truly beautiful and the best gift that can be received.

  2. newscoma Says:

    I’ve always liked this quote. For some reason it comforts me so I will share it with you:

    Every evening I turn my worries over to God. He’s going to be up all night anyway. ~Mary C. Crowley

    Rest and be well

  3. Bob Says:

    I linked over from Busymom’s blog. I’ve hesistated commenting because it’s so hard to read this - your emotion is so raw, so real. It’s hard for me because I lost my mom last year to cancer -she was 53. And in a way, a lot of what you’re feeling right now, I was feeling. I so want this to turn out right for you. For her. For your family. There is a definite truth and sincerity to your words. When you say here that you love her, I believe it. No, I feel it. And I’m sure she knows it too. I’m not a spiritual person, and haven’t been for many years, so I can’t pray for you. However, know that yet another stranger out there is thinking of you tonight. Has been all day. And will be thinking about you until things get better. Stay strong.

  4. IME Says:

    If the prayers of a total stranger several states away might help, you have all of mine. I know when my son was in the NICU and very ill, just knowing that people were thinking of him and praying for him helped. I’m thinking of and praying for you and your wife and your family.

  5. Atomictumor Says:

    Bob, by nature I’m not a spiritual person either. In fact, GAC was an athiest, and I’ve been a confirmed fence rider for 10 years.
    I think things have changed. I’d tell you why, but I won’t, for the same reason I wouldn’t convert religious friends to athiesm. Any port in a storm, man.
    I’m sorry to hear about your mother. I wouldn’t wish this, or that, kind of pain on anybody.

  6. Jeanette Says:

    Your wife and family, all of you, are in my prayers. Like you, I am not spiritual by nature and I express my own spirituality in my own way. I do not know you but, in reading your entries about your wife and family, I can picture you and I can feel the love you share.

  7. LissaKay Says:

    Damn Jake, I just got dried up from talking with Donna and reading your previous posts to her. She has no internet at home, so she’s gonna call me in the evenings for updates. Her heart is breaking too.

    My parents go to one of the biggest churches in Knoxville, Cedar Springs Presbyterian. They put you on the prayer list there. It’s a team of about 25 people that each have 5 people to call, then they each call 5 people and so on for a few rounds … there are now hundreds of people there speaking your names to God. Surely we have His attention by now.

    And speaking of the Old Guy … I’ve been doing this strange little dance with God my whole adult life. I kinda ignored Him for a few years, then all of the sudden I found myself begging Him for the life of my newborn son. He gave me my son, but at a price … my marriage. Since then, I have alternately begged for peace in my life, questioned him … why does He let these awful things happen to me? And I have raged against Him … when I just can’t take anymore. Then we dance some more. He spins me around, tosses me up in the air, then I fall to the ground and just before I hit, He swoops me up again for more spinning and twirling around. A spiritual tango, so to speak. I just want to sit one out. Catch my breath. But He always has more waiting for me.

    But still I Believe. I still have Faith. I yearn for Grace and Peace. My mom tells me that God has a plan for me, that all this is preparation for something bigger, something better. I just have to give in, to trust Him, live through Him.

    Frankly, I sometimes think the Old Guy is just a sadist. I mean really. Donna and I were just saying, why doesn’t shit like this happen to the crack dealer or the child molester? Why does it happen to good people like you and BJ?

    It’s. Not. Fair. Dammit. *foot stomp for emphasis*

    I don’t know where I am going with this, except that I do so understand this issue with God, and faith and all that. I’m no expert on these matters, having only had a few years of Sunday School, then I made it up as I went along. But I do know He’s a wily one, and will surprise you in ways you cannot imagine.

    I am praying constantly for a miracle for you guys. I will never let up.

  8. indemom Says:

    “I told her the boys will grow up to be good men, and that I will always love her. Our family will persevere. She will always be a part of it.”
    You said exactly the perfect things that a mom needs to hear, and I’m absolutely certain that she heard you, and that it eased the fear she must be feeling…As for that deal you tried to make with God…you can count on it.
    Your family is in my thoughts and prayers. There IS hope. You’ll never know how many people are with you now.

  9. The Breeze Says:

    AT you and your family are very much in my thoughts and prayers. God is there and He hears you. Believe me someties I wonder why things happen to me also,loke I’m down to my last 20 bucks and something breaks that cost 50 to fix,but it always works out. With all the folks praying for you and your family God is listening and moving among us. He is walking the halls of your house while you sleep,He continues the watch for you. He is lifting you up when you want to fall and if you do fall He will catch you. Hes always there for you no matter what. I’m not that good with words but I just wanted to let you know that you are in my daily prayers and have asked God to reach out and remove all the sickness from her body and to also touch you and your family as well as all the Tumor family. My God bless all of you.

  10. LissaKay Says:

    Oh, and remind me to ’splain that male nurse vs female nurse thing to you one of these days. It’s an interesting look at human nature, the inherent differences in men and women and why there’s a good bit of truth in that Mars/Venus thing …

    There I go, intellectualizing again … go figure.